2 weeks.. well more like 12 days.

R2D2 is up at the farm. He and my mum went out on a date last night. His favourite spot to eat at is Subway. I don't know why. Maybe because when I worked there he came along with me during short shifts if I couldn't find someone to watch him. But I guess the store here is under new ownership and not stocked for a "decent" meal. I'm sure it didn't bother him much, so long as they had olives for his sandwich. The more the better for that kid. After a lackluster dinner, they went bowling and then to see Paddington. Lucky boy there! Kind of jealous. I haven't seen a movie since I went with my mum!

Tink is so obsessed with Blues Clues that is all she wants to watch. Her favourite thing in the world right now is that damned blue puppy. While we were at BCCH, a lovely dear friend sent over the best care package for us that included a Blues Clues bathtub toy that HER daughter had. That damned dog goes everywhere with her. She sleeps with it, carts it around, eats with it, feeds it. Needless to say, she's a very, very happy little girl. She's so full of spunk. And her imagination is becoming well known. Like earlier she was trying to make her Blue toy walk in a pair of her outgrown red shoes. She tried for ages to get the 100 sizes to large shoes to stay on the toys feet. Needless to say, it didn't work well.

Dinky is ... well enough. We had an appointment with our pediatrician on Wednesday. Needless to say, he's not happy. Dinky has lost hard earned weight. A handful of ounces. The stay at Children's did a number on him. He's not one to have a bottle outside of home. I don't know why but we noticed it at Christmas, he pretty much just wanted to nurse the whole time he was hungry. It would be find if he could thrive strictly on breast feeding but the little guy just can't. For whatever reason he's just not able to. He has 2 weeks to get his weight up. And if our Ped isn't happy with what's been gained our next option is a feeding tube. Not something anyone wants so we have him on a stronger mixed formula. 16oz of water to 12 scoops of powder, which roughly turns it into 24cal/30ml.

I changed his bottle as well. Thinking that maybe the Ventaire just wasn't doing it for him any more, even with extra added holes and a cut in it. Moved him over onto Nuk with a mommy-modified nipple. He's taking both the new bottle and stronger formula better. Fingers crossed that this is a step in the right direction! Today is another med adjustment day. They happen every 5 days. I'm kind of on edge and anxious about this as it wasn't long after his last adjustment when we lowered his Keppra that he had his big breakthrough seizure.

Now. For those of you that know me, I'm pretty sure you've heard me (and possibly have seen) my lovely, lovely diaper bags and accessories. I pulled everything out last night to take a picture of my stash and decided I needed to repack the bags that I use. The wonderful thing about Ju-Ju-Be is that there are so many options for bags IN bags. The organization is delightful. Opening up a well packed bag gives me some weird sense of (angels singing). Hilarious as my house is so far from organized it's not even funny. I guess I feel like so much is out of my hands and out of control that at least I can have one small tiny bit of tidy? Maybe?

Ah, who am I kidding, I'm sure it'll go to pot again in a little while. Speaking of tidy, I need to dig under the couch to see if Dinky's snot sucker ended up in the deep dark hole of the Nether World. Wish me luck! I'm about to set out on a grand adventure. I really do need to locate the thing. The poor tyke is snotted right up. Just what every mum wants to do. Suck boogies out of noses.

And be walking, big sized portable tissues. Drool rags... has every mother used every pieces of clothing at least once to clean up some leaking body fluid? I know I have. Well not every piece but pretty damn close! You need to use what's at hand. And if that means spit-up is being wiped up with a clean, just about to be put on sock, then so be it. At least...

That's how I do it!

Day 8 at home!

Being home is a whole different kind of chaos. I forgot how much I missed the chaos that comes with my family. I'm still a bit hrumph over the fact we missed R2S2s birthday so when we got off the plane I ran into the store to grab the basics needed and a cake for him so we could do our own little birthday dinner with him the next evening. That went well. Being able to sleep in your own bed with your own blankets and pillows is far beyond the best thing!!

A huge shout out to my mum for once again dropping everything and making sure the kids are well taken care of. My motherinlaw took Tink for two nights as well, and our little girl had a great time hanging out with Oma and Opa.

I had secretly hoped that the addition of Clonazepam would have stopped Dinky's seizures. And for 9 days it did. And then, it didn't. I never, ever, EVER want to go through a tonic-clonic seizure again. Formally known as Grand Mal. Scared the living hell out of us. And it went on long enough that I called 9-1-1 and we took the ambulance to the hospital. The good news is, Dinky is fine. We just have to bump up his Clonazepam increase up by a week. It's a sick feeling, watching someone go through that.

The helplessness of dealing with something that is so out of your control. I'm a strong person and that was so far out of my comfort zone. So I told Dinky. No more of that garbage. None. Zip.

He probably won't listen to me. He's 6 months old.

On the high plus side, he's starting to reach for toys above him! They're not very far above them but it's progress. He's also rolling 3/4 of the way onto his tummy and back again! Clever little duck!

I'm so proud of all my kids. I love my life, regardless of how many bumps and curves. Because it is what it is. Change what we can and accept the changes we can't.

Going to take Dinky to get his weight checked. So many different scales. I'm kind of nervous to see what it says. I know he's lost weight. Time to bring it back up.