Well, if this doesn't give us answers I don't know what will.

It seems that some form of electronic devil ate my post. So I shall have to start again only this time a little shorter. Since we saw the Ped on Tuesday, he called Neuro and then called me.

He said they both agree that MRI and EEG need to be done to see why he's got infantile spasms, as that's what they thought it was. So they wanted us down there for....Thursday. I got the call Wednesday. Somehow by the grace of all things good I managed to get Husby a flight using his Aeroplan points as the best way for me and Dinky to get down would be for an interhospital transfer. So we were admitted into our local hospital Wednesday, late afternoon and transferred Thursday morning.

First ambulance ride for either of us! Dinky got a new bear which was really nice of them. First flight for him and first flight for me in something that small. We got picked up by another ambulance and brought to BCCH. Were admitted and set up in a bed. Obviously we got here before Husby. Who managed to show up in the nick of time just as we were getting ready to head down.

EEG was fairly uneventful as he decided to not have any spasms. And then he did. Hooray!! Glad he had them so they could record them to see what was going on. But where does that leave us? We waited a few hours for someone to tell us what's going on.

EEG showed signs of epileptic activity, but not every twitch is a seizure but they don't know which is what. His seizures are Myoclonic which is an uncommon seizure for infants to have so it gives them a good solid foundation to start looking in. Change in meds happened last night... MRI will be happening some time in the next couple days as well as a probable lumbar puncture. BCCH ophtomology will be looking at him, blood work and urine work will be sent to biochemical to see if it's metabolic.

So, just heard from MRI, will happen sometime Monday. Fingers crossed we can skip this joint Tuesday..

Because we would really like to be home for Wednesday as my bestie is coming out and R2D2s birthday is on Thursday..

Would be nice if they provided some meals here for me but food is for patients only. Parents are screwed. Not exactly nice... Even if they provided coffee. Or something. This is so expensive.

Not fair. Not fair at all. Husby is going to miss a bunch of work unless he leaves us here and goes back. Which he won't do..

Thought I suppose it is what it is.

And that's that.