It's a quite time in the house right now. My mum took R2D2 out to his school Pi/Math night where they get to play math games and can buy a piece of pie for a toonie. I know the money raised from this evening will go somewhere I just don't know where. Probably for the Math department. Would be the most logical choice due to it being Math and Pi night.
The house is slowly getting over the sick. Tink is feeling 100% better, hooray! Dinky however is still not exactly awesome. He's had a huge increase in his myoclonic seizures since this last Tuesday when he was put on antibiotics for his ears and throat. And by huge increase I'm talking like... yesterday in less then a 12 hours period he had 30 of his twitching fits. 18 in 12 minutes. I gave him his rescue medication as that seemed to be just a little tooooooo excessive for my liking. The day before he had 24 and yet again, his rescue was given
Today has been an improvement with only 11 so far. We had PT & OT here this morning. New PT as the one we had been working with has gone off on mat leave. Which is alright, pretty sure I'm going to like this new one. She seems to be pretty friendly. PT is back in 2 weeks and it's going to get serious in regards to equipment and what have you. Wedges for tummy time, a side positioner thingy so that he can side lay and has to stay there for a while. Dinky loves to hang out on his side but not for very long. He either just 3/4 lays on his belly or gets bored and rolls back onto his back.
So we will have things to work on with the proper tools to hopefully start seeing some progress. He lifts his head wonderfully when he is on my chest but there's no way that I can spend all day every day with him laying there for tummy time. I'm glad that we're finally starting to get the things we need to help get him on his way.
But it really isn't their fault either. They had to wait for another family to be done with it so that we could have access to it. The problem with our limited resources up here is that there tends to be items few in number. We just don't have the funding and a large influx of money for these kinds of things. Yet we make do with what we have. It's a lovely thing, being able to be so resourceful! Earlier today Dinky was on the floor with a pool noodle that had been cut in half under his chest like he PT had shown me and he was just fighting it. He kept trying to roll off and I kept putting him back on it.
So he was kicking up a huge fuss and getting pissed off that I wouldn't let him do what he wanted so Tink came over, sat down beside him, rubbed his back and started shushing. He calmed down for about 15 seconds before he started all over again. We have to be cruel to be kind. Though I have set a goal for his 1st birthday: I would like for him to have better head control so that he can maybe sit up supported and I don't have to worry about whether or not the poor kid is going to give himself whiplash with the way he just lets his head fall back.
Tomorrow is weight check. Fingers crossed he's 15 lbs! He's starting to tolerate solids a little more. Isn't so prone to gagging on them and occasionally will close his lips over the spoon. Progress! I will take it. Earlier today I positioned his hands on his bottle and Dinky held it for about 5/6 seconds. He's also become so in love with his Lulujo swaddlers. He loves them so much. Epically sweet to see him sleeping with his blanket hugged tightly.
R2D2 came home just now (well, I suppose about 20 minutes ago) and he was all excited because he won a prize tonight! He had mentioned earlier that he hopes he wins one but knows not everyone can be a winner.
Real life lessons.
As my mum says, there are more losers in life than winners. Not everyone can be a winner. Nor does that give them the right to have complete fits for not winning. Learning to lose with grace and dignity is a valuable skill I think everyone should learn. Now he's all tucked up into bed and perhaps I can convince Dinky to have a bottle and to take a sleep so I can tidy up the house and MAYBE get a bath.
Wouldn't that be lovely.
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