Wednesday, 26 November 2014

Coffee and the cautiously optimistic

It's been a while since I've been here. Naughty. I've been trying to find things to write about. Okay. I've been lazy. Sometimes the need to write just doesn't find me. It's like a mental muse has lost its way and has gotten stuck somewhere in the murky fog of coffee soup that is my brain.


I still haven't found that fish. I give up. I can no longer bring myself to give a worry about where that missing pleco has gone off to. Chances are it's been filtered through the gills of the other tank dwellers and recycled. No loss. More food for the other one to eat.

It's the middle of the last week of November. How did that happen. How can it be a month until Christmas? How is this even possible?! I'm going to be 2....9? R2D2 will be 8 in January. I refuse to think this even possible. Tink is currently in her room trying to convince herself she doesn't need sleep and that I should let her out. I don't see why she's waiting for my permission. She knows how to open the gate. She does it every.single.night to come and creep into our bed.  But, there she is, laughing and making gibberish sounds to who knows what and calling out  "Hullo? ...... Hulllllloooooooo? DAAAAAAAAAAAAAAAA? Hullo?" 

Maybe she'll sleep. That would be nice.

You ever sit there and wonder and worry and just get yourself into a mental knot over things? There's so much going on lately that I'm surprised my eyes aren't crossing. Dinky got a set of blood work done on Monday. That was awesome to deal with. He was such a champ! They had to stick him three times. And twice they went in blind and went fishing! Because they couldn't find a vein! WHY!? If they weren't able to get it on the third try, they were going to call the Ped in and tap into a vein on his head. Thank god for third time's the charm! Even if he does have bruises.

And he was miserable yesterday. He's sleeping right now.

We had our Peds appointment today. We were walking down the hall and he was laughing about how he was talking to Dinky's Neuro and she couldn't remember what she told us so to let her know what I tell him. ... I knew she was spacey but there are notes for a reason ...

Blah blah blah.

Take Dinky out of his car seat and lay him on his belly like requested. He lifted his head up a TINY smidge! Rolled him onto his back and he was swinging his legs over a bit like he was trying to roll over. His wrists weren't at their half cocked position they have been in for so long. AND his eyes weren't crossing. Nor have they been crossing much lately. His small heart murmur sounds fine and no troubles there. His soft tissue cleft isn't causing any issues nor is his bifid uvula (that dangly thing for those that don't know what it's called).

Neuro told us at the beginning of the month that she was going to focus on the central Nervous System. Peds said that if there IS a CNS problem, they're all pretty much golden and can be "fixed" or outgrown. But he feels that Dinky will probably just grow out of it. Neuro feels he'll probably grow out of it. Genetics said there's a 60% chance he'll grow out of it.

So there's my cautiously optimistic moment.

And what is it? His hypotonic state. The never ending state of floppy. But it's not because he's weak. In fact the little goober is very strong. But he's just got low/poor muscle tone. Whichhecouldpossiblygrowoutof!

Ahem.

Physical and Occupational Therapy ladies shall be here in a few hours. Which means I should put some thought into vacuuming the floor. Because that's always nice. And I'm just looking for an excuse to use my kickass vacuum. But who wants to sit on a floor that's got dog hair on it? Fingers crossed for good things from these ladies.

Oh. One more small thing.

We now have...

11 FREAKING POUNDS ON THE SCALE!


In fact Dinky's exact weight is 11lbs1.4oz.


BOOM baby!



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