Oh joyous

It has been a very, very long few days. In fact the last few days has felt as if it were a week that lasted all of eternity. We got out of the house slightly later then we wanted, had to drop a cheque off at husbys parents, then drove for a few hours and had to stop fairly often to feed Dinky. Went to Walmart and grabbed food for the road so that it cut the cost of eating out. And we were still able to eat and drive without stopping. Needless to say we were driving for 15 hours.

Checked into the hotel and settled in. Next day we went on our walking adventure. Learned that when someone suggests taking the bus, do it. I have a healthy respect for mothers that walk in the city with strollers.

My legs STILL hurt. Or at least it's all phantom pain. BCCH is a maze. I have an appreciation for maps and helpful people. So, bring on the genetics meeting. Learned a few things there.

Firstly, Dinky is 10lbs6oz!! Way to go chubs!! 

Secondly.. it's going to be a long year. Dinky has mild ptosis (droopy eye lids), a celft soft tissue palette (new to us), minor umbilical hernia, weak stomach muscles... So he will be referred to a cleft specialist and the Peds opthamologist. X-rays on his skull to see of his plates have fused at all. If they have, he needs surgery. His soft tissue cleft will probably need surgery...

He's also been classed as failure to thrive. Was wondering how long that would take. Been worried about that for a while. He's growing, well for him. But he's not growing enough for anyone at all.

Neuro the next day... He's not weak. He's just got really low tone. He's showing certain reflexes and then not such strong ones in other areas, or so that's what I think. So they're going to start looking at the central system to see if they can find the problem.

Loads of blood work...that was a giant headache but Dinky took it like the damn champ. I'm so proud of him. But now we have a lot of waiting games. MRI in 2-3 months. Ugh..

Just a quick post tonight. I'm tired.

On the big kid front...

Both of them AND my mum have hand-foot-mouth disease. I feel so bad for them all. I miss my kids but we can't bring Dinky home and risk him getting it.

Boo..