...

I'm just going to say this.

We have no idea who our neurologist is. Our ped got a hold of whom we thought was our neurologist only to be told that no, she in fact wasn't. Talk about a complicated situation that is really starting to make me lose hope in the place that is supposed to be an amazing hospital. I have yet to have a really good experience there. Now our Ped is on the war path for any kind of answer as to who the hell is taking our case and why the hell it's taking anyone so long to get their act together.

On top of all that, Dinky needs a G-Tube. He's not gaining weight and when he gets sick he loses weight so quickly it's kind of scary and unsettling. Not to mention that he is probably aspirating feeds quite often which explains why he's constantly on antibiotics... So Ped called this morning and told me that on top of finding out that we have no actual neurologist, he talked to one of the surgeons down at BCCH who said to write a referral letter and he will try and get Dinky in as soon as he can.

So I texted our IDP, who called me and chatted for a bit and she called our PHN to talk (who's out of office until Monday) and then she called our Ped to find out if there's anything she can do on her end. We really are blessed with such a great team that is working together to try and get Dinky the best care possible. I'm not sure where I would be if I didn't have them. Or really, my whole support  network that we have set up.

So. Dinky gets a G-Tube. Which means that we're going to be getting onto the At Home Program (AHP) which will help buffer the cost of everything. Ugh. I feel sick. So much going on all at once that it's just like my brain is ....

Mush.